Game on!

So there’s this quote I love…

“Life is 10% what happens to you, and 90% how you react to it.”

This became my motto. I could wallow in the self pity of not being able to walk properly, see properly, hear properly, or I could see just what I could achieve with the parts of me that were still working.

I think it was around Tuesday when my dressings came off. With the compression gone, my ear kind of exploded out of the side of my head. Whilst I was planning hairstyles that would hide my wonky face and deformed ear with my hair stylist Nicki, the docs and nurses were a little concerned that it could potentially be a CSF (cerebral spinal fluid) leak.

Quite surprisingly, I was not so bothered about the fact that I looked a complete and utter state, I wanted to be up and about. By the Wednesday I had my cathetar removed. Freedom!

As soon as the door closed behind the nurse, who had given me strict instructions that if I needed to move I should call for assistance, I was figuring out the best way to get out of the chair to practice this walking lark.

I used the wheeled table a bit like a walking frame. It was a marker for halfway point between the chair and bathroom door. If I could make it to the bathroom, there was a rail on the door, and then I could use the wash hand basin as support.

And with my plan in place I was off! It took about 10 minutes to shuffle my way to the bathroom, and when I got there I cried (through one eye!).

As I sat on the toilet, celebrating my achievements, along with the fact I could pee by myself, there was a knock on the door.

“I told you to press the buzzer if you needed to move!” I’d been busted.

I’m currently trying to get more writing projects off the ground, so if you enjoy what you’ve read so far, for just the cost of a coffee, you can support me here

Published by Sara C

It's hugely important to raise more awareness of brain tumours and the implications they can have on patients' lives. I aim to help to create wider understanding of the effects brain surgery and a diagnosis can have on an individual and their families on a emotive level through my own experience.

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