I have been involved with The British Acoustic Neuroma Association, also known as BANA, since the time of my diagnosis, and in June 2020, I was invited to become their Ambassador.
They provided a lifeline to me and my family at what was an incredibly difficult time. Through speaking events and undertaking challenges, I have raised funds to help them continue their work to support individuals and families going through acoustic neuroma diagnosis and treatment.
With support from the charity, I have also been able to raise awareness of the issues faced by patients navigating treatment options within the NHS, and have contributed letter templates that can be used to inform local MPs of the situation, which have been distributed to BANA members.
You can find out more on their website.
I have recently been asked to share my story by the charity Brain Tumour Research. Brain tumours are indiscriminate; they can affect anyone at any age. What’s more, they kill more children and adults under the age of 40 than any other cancer… yet historically just 1% of the national spend on cancer research has been allocated to this devastating disease.
Brain Tumour Research are the only national charity in the UK dedicated to raising funds for continuous and sustainable scientific research into brain tumours and are a leading voice calling for greater support and action for research into what scientists are calling the last battleground against cancer. To find out more about their vision, visit their website.
You can read more about my story and others here, on the In Hope section of the charity’s website.