Recently, I’ve been feeling ok. I’ve started to accept that ‘ok’ is as good as it’s going to get, but it’s a place I’m happy to be. There is still a mix of good days and not so good days (I try not to be negative by using words like ‘bad’) and that’s ok too.Continue reading “The gift that keeps on giving…”
Category Archives: Uncategorized
Andrew’s Story
“I was 40 when I was diagnosed with my Acoustic Neuroma. It was 3.5cm in diameter. I had been experiencing quite a few symptoms for months; like most men, I ignored them for as long as I could. My hearing was slightly off on the right side. My doctors said there was nothing wrong. ThenContinue reading “Andrew’s Story”
Mark’s Story
“I was diagnosed with an Acoustic Neuroma brain tumour in September 2021, two days after my 48th birthday. It was 2.4cm in size and was pressing on my brain stem. My journey started a few years before. I first noticed a change in my hearing, when listening to sounds through my right ear became distorted.Continue reading “Mark’s Story”
Beyond Recovery
On 1st October 2019, I stood on the summit of Jebel Toubkal, the highest mountain in North Africa. My journey didn’t begin there though; it started 506 days earlier, as I lay in a bed on a neuro high dependency unit, unable to walk and struggling to adapt to my new normal. Almost a yearContinue reading “Beyond Recovery”
Beyond Recovery
You know what they say, “If your goals don’t scare you, they’re not big enough!” Well, for quite some time I’ve had an idea… 17 days on the road, mostly alone, gave me lots of time to think about it, so here goes… Getting back out doing what I love after surgery was something that,Continue reading “Beyond Recovery”
Training with neurofatigue: Tips to help you achieve your fitness goals
I’m often asked how I manage to train whilst still suffering from many of the effects of my brain tumour surgery, in particular neurofatigue. In this article, I hope to share some of my experience and what I’ve learnt along the way. Living with neurofatigue can be challenging, especially when it comes to exercising andContinue reading “Training with neurofatigue: Tips to help you achieve your fitness goals”
The road to self discovery
Sunday, 26th March 2023. I set off from our campsite in Highbridge, not too far from Bristol. The weather was, well as you can probably guess, wet. It was just as wet as when I finished my first LEJOG attempt there back in September. Simon Graham, my nutritionist, was joining me on the bike forContinue reading “The road to self discovery”
A personal journey…
I’m still reflecting on how I finished my Land’s End to John O’Groats challenge. It certainly was a challenge, full of obstacles I needed to overcome along the way, most of which I had at some point planned for, but none of which I thought (hoped) would actually materialise. There will be far more onContinue reading “A personal journey…”
Changing gears…
There’s just 4 weeks to go until I return to the challenge of running to John O’Groats. I have invested heavily in this as it’s a cause that is really important to me. It also gives me some sense of purpose and reason to be in this strange world I now find myself in. TheContinue reading “Changing gears…”
Neuro Fatigue – The Silent Saboteur
Neuro Fatigue can be an unwanted daily reality for many with an Acoustic Neuroma and many other conditions. Personally, I’m almost 5 years on from my diagnosis and there are still days where I feel like I’m running through treacle (or drowning in it!). There are times I can’t remember simple steps for a taskContinue reading “Neuro Fatigue – The Silent Saboteur”