***UPDATE – POSTPONED UNTIL 2026 I’ve decided to take on King Alfred’s Way, an iconic 219-mile (353 km) adventure across the rolling hills and rugged landscapes of Southern England. And if you’re wondering, yes, it’s every bit as brutal as it sounds. But here’s the twist: I’m doing it despite a long list of excellentContinue reading “King Alfred’s Way”
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Living Beyond the Surface: The Hidden Struggles of Brain Tumour Survivors
When someone undergoes surgery to remove a brain tumour, the general assumption is that they are “fixed” and that everything will return to normal. The visible aspects of recovery—such as the scar from surgery or physical healing—can often lead to this misconception. But the reality is far more complex, especially for those who live withContinue reading “Living Beyond the Surface: The Hidden Struggles of Brain Tumour Survivors”
Balance, Brain Tumours & Breaking Limits
Imagine stepping out of your car, feeling unsteady, and before you can even catch your balance, someone accuses you of being drunk. That happened to me. And it broke me. I wasn’t intoxicated—I was simply trying to function with a brain tumour growing on my hearing and balance nerve. But in that moment, it didn’tContinue reading “Balance, Brain Tumours & Breaking Limits”
Living With a Brain Tumour: The Battle You Can’t Always See
When you hear the words “brain tumour,” what comes to mind? A dramatic hospital scene? A miraculous recovery? Maybe a sad story with a montage of soft piano music? For those of us living with or supporting someone with a brain tumour diagnosis, the reality is a little more… well, messy. And no one gaveContinue reading “Living With a Brain Tumour: The Battle You Can’t Always See”
Running for Recovery: My 410km Journey Across Iceland
In September 2025, I’ll be embarking on a journey that represents much more than a physical challenge—it’s a test of resilience, hope, and determination. I will be running from the north to the south coast of Iceland, a land known for its stunning landscapes and unpredictable weather. This endeavour is not just about covering theContinue reading “Running for Recovery: My 410km Journey Across Iceland”
Understanding Survivor Guilt: Navigating Life After Surviving a Brain Tumour
Surviving a brain tumour is a monumental achievement. However, for many survivors, the joy of overcoming such a life-threatening illness can be overshadowed by feelings of guilt and sadness known as survivor guilt. This complex emotional experience can be particularly challenging for those who have survived a brain tumour when so many others facing similarContinue reading “Understanding Survivor Guilt: Navigating Life After Surviving a Brain Tumour”
The gift that keeps on giving…
Recently, I’ve been feeling ok. I’ve started to accept that ‘ok’ is as good as it’s going to get, but it’s a place I’m happy to be. There is still a mix of good days and not so good days (I try not to be negative by using words like ‘bad’) and that’s ok too.Continue reading “The gift that keeps on giving…”
Andrew’s Story
“I was 40 when I was diagnosed with my Acoustic Neuroma. It was 3.5cm in diameter. I had been experiencing quite a few symptoms for months; like most men, I ignored them for as long as I could. My hearing was slightly off on the right side. My doctors said there was nothing wrong. ThenContinue reading “Andrew’s Story”
Mark’s Story
“I was diagnosed with an Acoustic Neuroma brain tumour in September 2021, two days after my 48th birthday. It was 2.4cm in size and was pressing on my brain stem. My journey started a few years before. I first noticed a change in my hearing, when listening to sounds through my right ear became distorted.Continue reading “Mark’s Story”
Beyond Recovery
On 1st October 2019, I stood on the summit of Jebel Toubkal, the highest mountain in North Africa. My journey didn’t begin there though; it started 506 days earlier, as I lay in a bed on a neuro high dependency unit, unable to walk and struggling to adapt to my new normal. Almost a yearContinue reading “Beyond Recovery”